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Journées OIFE

OIFE Youth Night, 13th June 2020

Par 10 juin 2020novembre 4th, 2021No Comments

Next Saturday, 13th June 2020 there will be an informal chat session for people with OI (age 18-35) & Friends from all over the world!

The Osteogenesis Imperfecta Federation Europe (OIFE) does not have a formal youth group, but we have two youth coordinators and annual youth events. Unfortunately our planned youth event in Poland 2020 had to be cancelled because of the Corona virus.

OIFE Youth on Zoom
We have therefore moved online in 2020 and our first OIFE Youth Zoom will take place:

  • Date: Saturday 13th of June
  • Time: 20.00 – 22.00 Central European Time (Amsterdam, Oslo, Rome etc)

People with OI between the age of 18 and 35 and people otherwise connected to OIFE Youth Events.
You do not have to be a member of one of OIFE’s member organizations. People from all countries in the world can attend, as long as you are able to communicate in English to some extent.

REGISTRATION DEADLINE : Deadline for registration is June 12th 23.55.

LINK TO JOIN : We will send you the Zoom link to join the event minimum 8 hours before the meeting starts.

Registration link: or scan the QR code :


Bénédicte ALLIOT

Bénédicte ALLIOT

Présidente de l'Association de l'Ostéogénèse Imparfaite
Militante sur les droits des personnes handicapées
Membre de la CDAPH de la MDPH 33
Engagée sur la maladie des os de verre avec les familles, les médecins, les CHU et tous les acteurs qui permettent une insertion au quotidien.